Here is the news story: http://www.wfaa.com/news/health/Harpers-Roar-262779081.html
And you can go here to read the article:
https://shine.yahoo.com/parenting/texas-family-fights-to-use-experimental-drug-on-their-baby-daughter-174155427.html
The family really wants to get the word out for even more people to sign the petition urging the pharmaceutical company to give little Harper the drug and a chance at life. So I encourage everyone to please take a moment to sign this petition: http://www.change.org/petitions/kristina-lemonidis-bowyer-grant-compassionate-use-of-isis-smnrx-to-harper-olivia-singh-and-other-children-who-don-t-qualify-for-clinical-trial
I am SO blessed to have 2 very energetic, healthy boys and could not imagine watching my child go through this. Please join me in praying for this sweet girl and her family.
Reid, Emma, Connor and Harper
Connor and Harper



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